Hi! Exhausted over here! Today was a perfect chemo day. That's great, eh! That means everything went as it should. Phew. We had to be there for 8:30 am, and CHEO is an hour from here...Luke got his blood work done, via his port a cath and then we waited around a while until he got his chemo. The resident Dr. nearly gave me a heart attack, as they like to do..maybe in hopes of practicing resuscitation on parents? He said Luke's counts were good, except for one that was low..turns out, it was fine, just low from the daily chemo. I honestly wonder if they don't realize how on edge us parents of cancer kids are. All we care about is the health of our kid. Nothing wrong? Don't worry me with WBC, ug.
So that was today so far...we are tired, we are thankful, we are feeling like we got this under control, but we know at any point, any bruising, and bad blood results, and off behaviour, and fever, can send us right back to square one..frig. I wish there was a magic cure. A cure that stuck for sure.
Some days, I've had Luke wear our pin that says 'childhood cancer sucks,' but that isn't the answer either. Of course we want the world to know our hurt, so they can offer some solace, some compassion, some help. Over time, I realize, we all need to be seen, heard, loved on..but all the shouting from the rooftops really does little...
I still am the one who goes to bed with the heavy heart, heavy burden, and wake up with this responsibility, and privilege. No matter how many people know, it's still our family and our life..but I tell you, it does feel good to know we are loved and supported, and for this, I thank YOU!